It’s been a little over two years since my diagnosis, embolisms, and craniotomy. I’ve been doing amazingly well…my hair grew back except where the scar is. To look at me you’d never know I had brain surgery.
I had the ‘chasing lights’ optically a lot before my surgery (the AVM making itself known but thought to be migraines without pain) and it vanished afterward for over a year. I now have the occasional ‘chasing lights’ when my bp is up a bit, neurologist speculated it might be seizures. Tested for that but no, it isn’t. Only thing we can figure is it must be from scar tissue where my AVM was removed since it was on the surface of my visual cortex behind my right ear. The whooshing I heard after surgery lasted about eight months, now it’s gone and hasn’t come back. I returned to my job immediately after my surgery (as a crossing guard) with only one accommodation: a 2 hour nap before my afternoon shift. I tired easily for nearly a year…now I’m fully my old self. My scalp that was numb after surgery is still numb but I’m used to it now. I was told it was 50/50 that it would stay that way.
Since my life-saving surgery I’ve sent my neurosurgeon a card every anniversary to let him know how I’m doing and how grateful I still am he saved me. I’ve bought a house, slowly renovated it, resumed dating after not for over 20 years, and finally learned how to swim. After almost drowning in a pool at age 4 and 3 failed attempts to learn how, this is a MAJOR accomplishment for me.
Overall, I have to say I am beyond grateful for my neurosurgeon, my mom who has stood by me always, and what I learned from the people in here. Your advice, stories, and support …you took some of my fear away when I really needed it.
THANK YOU ALL! Stay strong! Live well!