New to this Forum, in hopes to get some insight. I usually find that patients know more than the doctors. I’ve been on this weird journey of knowing something is very wrong with me but not knowing what. I’ve been going to doctors all over New Mexico and Mexico. I’ve been treated for MS, migraines, Typhoid fever, ear infection,and parasites. I’ve always been super healthy, runner, farmer, mom, librarian. In April I started feeling fatigue and nauseated. then I started having “episodes” and my left side has been numb/weak/painful since then. My doctor told me that I wasn’t allowed to drive so I started hitch hiking to work, which didn’t end up working out that well. I’ve been unemployed since June, struggling emotionally/ financially with not working. I want to go to work so bad, but right when I start feeling good it hits me again. In october I had an EEG that revealed seizures (Partial) though I think I have absence seizures too. The epilepsy meds I tried were truly horrible and scary and I was having up to three seizures a day!Against my Albuquerque Nuero’s advice I’ve been on the Ketogenic Diet and take a CBD/THC tincture, with that I’ve been managing my seizure. I can still be triggered by light patterns BUT it only causes a tremor on my left side.I’ve currently gone three weeks without a seizure (which feels amazing!!) My last MRI revealed a malformed artery on my right frontal lobe, a Nuero at UNM confirmed that he thought it was AVM from a photo I emailed him.
So here’s what I’m wondering. My left side really bothers me. Its like I have two different bodies sewn together right down the middle. Some days its not so bad but other days I feel like my whole left side is a ghost. My left side can feel really sore and tense. And when its bad I’m in a brain fog, I feel confused, I forget words, I’m dizzy, I’m nauseated and its scary. I’ll have a couple days of feeling awesome, and I can ride my bike 15miles then other days I can barely walk because I’m dragging my left side and I can’t remember my cats name! Does anyone else go through this? Is this something I’m just going to have to learn to get use to? will I ever be able to go back to work? Advice please