HAPPY BIRTHDAY !!!
Thank you for this lovely gift you share with us on your Birthday .
You are one who is infused with desire and one must wholely desire something to see it and make it so . Your abject honesty is the true path to understanding that alterations may well be necessary in order to achieve the ultimate goal ; To make " it " so as best you can with the mind and means you have and all the extra that you can dig out . You are by even the most stringent criteria always making it so and one great success at improvisation with determination .
HAPPY BIRTHDAY HANNE !!!
Thank you for your kind words Marianne
It is 20.40 pm here in Norway and time for me to go out and celebrate my day. I will spend the evening together with good friends, playing cards and eat cake
…so no study for me tonight!!
A late happy birthday from Sweden:)
Thank you for sharing youre thoughts. You are a really strong person and I think you can do anything with youre life. To se the beatiful in the small things in life and to keep fighting and finding the positive in all the darkness. I understand youre need to keep on with youre studies. It is inportant to do the things that is that strengthens youre identity and the feeling when you succed gives you more power to keep fighting.
You are truly an insperation and I wish you the best .
Tråkigt att höra om din pappa med som du skrev så är det ibland en brefrielse att få somna in och slippa lida mer. Jag tror som du säger att han kände att han var redo och att det var hans tur att gå. även så för min vän.
Hoppas du fick en bra födelsedag! Och att det kommande året innehåller många positiva överaskningar! Tänker på dig och finns här om du behöver någon att prata med
Tusen takk Monica
Selv om jeg ikke vet om jeg faktisk greier å fortsette studiene så vet jeg at jeg ikke gir opp før jeg møter nok motstand og innser at det beste er å slippe taket og forsette livet i en annen retning. Alltid her for deg også om du trenger noen å dele tankene dine med.
Jeg har startet en undergruppe for oss fra Skandinavia, tanken bak er at vi kan dele våre erfaringer med hverandre. Helsesystenet vårt er slik at alle har rett til behandling men at det ikke alltid er opp til oss pasienter å bestemme om vi faktisk kan bli behandlet.
Akkurat det er vanskelig å forstå for enkelte her inne hvor det private helsesystenmet gjelder. Er litt lei av å høre at du kan jo alltids bare få en second opinion. Nei, det kan jeg faktisk ikke.
Klem Hanne xxx
Hanne, it has been really helpful for me to have found this site and for your encouraging words in your blog.
My kids are not hanging around much as they are teenagers and it’s not so cool to be with Dad, even if I’m sick (but not all the time at all). Since embolisation six weeks ago I have had 3 seizures, and have not had much help from neurologists, GP’s or anyone else.
I want to adjust my medication but realise this can have a negative affect on seizures as well. I feel trapped, and when a seizure begins I have terrifying thoughts about how unimportant I am in relation to the universe and “it doesn’t really matter” until I lose conciousness.
Does anyone else get this or is it just the part of my brain where the AVM is situated?
It’s coming into spring here in New Zealand so I am looking forward to warmer weather and longer evenings, trying to find some positives. Your messages have really helped me cope, thank you very much.
Positive thoughts to you all too. Phil : ))
Philip: I am glad you found this site and my blogs helpful.
That is really encouraging for me, to continuing share my thoughts and time in here with all of you.
I have been trying different types of “typical” anti seizure medications without much success. At the moment I am taking only Piracetam, which seems to help for my myoclonic attacks.
Philip. you are not “unimportant in the universe”, thoughts like that, is a way to handle facing a seizure, like “whatever happens happens sort of state”.
Have you read my blog “The Voyage to Seizure”, there I describe how I feel when I am facing a seizure. When I finally get there, “it does not really matter anymore, whatever the outcome will be…”
Lucky you, facing springtime!
On the other side of the planet, literally, which I think Norway is in relation to New Zealand, we are facing a new winterseason. The first snow was falling yesterday, and the sunset is getting earlier every day…
Not my favorite time of year, when the darkness and cold penetrate and give rise to winter depression…
I guess it’s good that you know what I mean. I just got back from a walk in the forest with two doctor friends, they understand medically but the actuality of enduring a seizure is not something they can imagine.
I just find them scary as they come on, I’m not so bad afterwards (I think I’m in shock).
It is nice to have springtime here just as I am facing up to some of the realities of my treatment, sorry you have winter and feel it will be depressing. Here the clouds are great for photography in the winter - we are exposed to the “Roaring Forties” winds that encircle the southern oceans.
You can see some pictures from my place here: http://www.youtube.com/watch?v=7sEqlLTI7TA
Everything is being like spring today, the sun is out and there is a jolly breeze across the harbour, people are sailing yachts and fishing…
Philip: When it comes to the understanding of seizures, I find that there is a lot of “experts” that do not know how to approach it, if they can not find the pattern they are seeking from the EEG.
Thank you for sharing your stormy view. I love taking pictures of the clouds, something about the ever changing pattern that I find fascinating…