I have an avf at the center of my brain near the brain stem. I have had two failed embolization attempts and the third was only somewhat successful. Out of the three vessels feeding the fistula they could only close off two. The third is a main vessel and could not be blocked. I just had proton beam procedure. They say it will take up to three years for the the results. My question to you all is… how do i handle the fear of a bleed. I still have the pulsating tinnitus. I still have head pressure especially behind my eyes along with pain in my eye. Cat scans look great, so they say. Whenever I cry I have nasal congestion which only makes pressure worse. I just don’t feel better from any of these procedures and I am scared. Any advice?