One of the things I liked instantly with this support group was that people was honest, the stories was real!
I could connect, I was no longer on my own...
Hearing other people experiences has made me realize both the similarities and differences in each case.
It has been something worth having back in my mind during this journey of avm knowlege.
I know that each avm story is unique and special and that it is important to have this in mind all the time
while searching and reading different stories.
Still, I am searching for any experiences with Proton Beam treatment, be it the good ones or the bad ones.
I want to know as much as possible to be prepared for possible complications as well as a possible positive outcome :) Sum sumarius it helps me with my final decision, that is if i have a choice?
Knowledge is good, especially when dealing with a new avm diagnosis and a tool to use before meeting the medical team and the different treatment options that lie ahead.
Often as a newly diagnosed avm patient you might have many questions that general doctors can not answer.
This site is often found by people that seek out, googling, desperately searching for some answers or to find other people they can connect with. Like I did!
Finding this support group where you can let go, being open about your worries or sharing moments of feeling good, being helpful, or simply writing down the thoughts that you are thinking in a blog...
...has been really therapeutic for me and for a lot of other members in here.
Thank you Ben for creating this support group!
I love it ☺
Peace and Love