I’ve missed you - and it’s my fault. Well, it’s actually sort of my fault, probably more the circumstances around me.
Either way, here’s some thoughts on my journey - I hope they bring you, if nothing else, a small iota (it’s been a long time since I have used that word) of realization that we are all walking along the same mountain path.
Did you know when you are dealing with PPTH (persistent post traumatic headaches) and then you come down with a normal old winter time virus, it gets very very ugly. I learned that this week.
However, in spite of that nasty virus, a couple of other interesting things have been going on. I’ve been having more problems with eating (It’s that whole swallowing thing that’s the challenge) and with choking/coughing.
Had a follow up appt with the laryngologist on Wednesday. And it turns out I have the worst case of candidae infection in my throat that he has EVER seen.
That’s not the type of attention you want to have. So what do we do about it? Doc is consulting with their infectious disease Drs to figure out but it looks like they will have to go in and remove some of it and then try the rest medicinally. I don’t have a very good history in the last couple of years of having breathing tubes etc. go down my throat and the concept of cutting things off the side of my throat makes my throat hurt already, so we’ll see what happens. I will definitely keep you informed.
But wait, there’s more, it appears that I also have what is called laryngeal hypersensitivity syndrome. In other words, my eating system (technical term) thinks I’m choking with every bite and every swallow. Special.
We went home with an odd juxtaposition of good and bad bouncing through our heads. On the one hand, we have a plan to address part of the problem. On the other hand, I’ve had thrush before and realistically, it’s going take probably 6 to 9 months plus throat surgery to fix it.
The doctor we went to is in Ann Arbor - about 2 1/2 hours away. I think we’re going to get very familiar with that road
Thanks for walking this walk with me and with all of us.