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I can't believe the day has finally come!


#1

2 rounds of radiation, countless MRI’s, CT’s and Angiograms, I even became an RN… Saw the Neurosurgeon today. 9 years have passed since I started treatment and he finally said the words I thought I would never hear: Your AVM is gone. I’m not even sure if it has sunk in. I thought I had the most stubborn AVM and it never wanted to go away. But its finally gone!


#2

WOOHOO!! Congratulations. What a relief, I’m sure, after all this time. You must be feeling a flood of emotions. Good job, well done!!

Brent


#3

That is fantastic news! Great to hear and you made my day. Take Care, John


#4

great news


#5

Congrats! This news let’s all know there can be a road to recovery. I just started my journey down that road, but this gives me hope that we can conquer this. God Bless :smile:


#6

CONGRATULATIONS!!! That is fantastic news and I am so happy for you… God bless!


#7

Congratulations!


#8

Great news, congratulations xxxx


#9

Really happy for you! Congrats!!!


#10

Awesome!, Sorry did you mention where it was located?


#11

Congratulations! Godbless


#12

Wonderful news!


#13

Congrats, Christine!


#14

This is awesome news!! CONGRATULATIONS!


#15

Wonderful!! Did your AVM ever rupture? If not, this is even better news! Enjoy your health. :heart:️️


#16

It was in my left temporal lobe and never ruptured, thankfully.


#17

That’s great! Can’t wait till I hear those very same words. So happy for you. How big was yours if I may ask?


#18

Happy for you. Have you been taking meds? For seizures like Keppra? BP meds?
I want to stop all these.
I just discovered my AVM in February. Quite large, frontal right lobe. I am 73. Have been to seen all doc’s
Neurointerventional radiologists,surgeon, Cyberknife.
Last doc after I asked, “what would you tell your mother to do?”
“You have lived with AVM for 7 decades! Do nothing!”
AVM is in a critical spot likely cause right side paralysis and possible speech impairment.

Thank you for any responses!
Patti8


#19

My AVM was almost 4cm at its largest, about the size of a golf ball. I’ve had 2 rounds of radiation and have been on seizure meds- topamax. I never had a bleed. I was told to treat because I’m so young and at some point I might have a bleed if I didn’t treat it.


#20

Awesome!!! What great news!!!