Haven't posted in a long time. My daughter had a rupture last October. Her AVM is a Grade V, so it's inoperable. She has had two SRS treatments... and now we wait... and watch. Unfortunately she's had some swelling issues. The edema is causing problems with her left foot and she's lost all use of her left hand. After a round of oral steroids last month didn't work, a few days of IV steroids at the hospital and now an oral steroid taper seem to be helping... at least with the foot. The doctor is also recommending we look into hyperbaric oxygen therapy. I've been reading up on it and it appears to be helpful in the case of brain swelling due to SRS. Has anyone here used this treatment before and if so, what did you think? Thank you in advance for your help.
Hi Familyfirst, Its seems timing is a funny thing as there is another post all about this topic also on the main discussions forum, : http://www.avmsurvivors.org/forum/topics/hyper-baric-oxygen-therapy-questions
I see its more active than yours and thought I'd link it for you hoping that any replies on this one will help. Thanks and take care.
Thanks. That post is from 2014 and it popped up again because I asked a question. Unfortunately, it sounds like I shot myself in the foot by doing that.
I know of a patient with severe AVM in the foot who underwent hyperbaric oxygen therapy intended to help heal ulcers. The AVM became dramatically worse very quickly after one or two sessions.
Thank you. I wonder why that's the case?