I was never diagnosed with an avm, I am 62 years old. In June 2016 I developed a severe headache as well as blurred vision. the first visit to emergency sent me home with pain medication. 12 hours later I was in the hospital, had a hemmorrhagic stroke due to avm. Craniotomy was performed to relieve pressure, drain blood/fluid. I was put into and induced coma for 2 weeks. all paperwork from surgery refers to an avm as the cause, as well as doctor describing pulling out a "clump of veins, from the right parietal lobe.
I am 7 months post surgery. Very lucky to be walking and talking! I feel good, energy levels are good, no headaches. Some vision issues, which may or may not resolve. At this point, they probably will not, but I still feel fortunate.
At this point, I feel quite frustrated with all the follow up tests the doctor is requesting. I had several CT scans / MRI’s while still in hospital, and reports say nofurther evidence of aneurysm or vascular malformation. I have since had 2 brain MRI’s and 1 MR angiogram. My Neurosurgeon is still not satisfied, and wants me to have a “regular” cerebral angiogram with the catheter. after all of the CT cans (4), and abdomen/chest xrays (8), I am concerned about more radiation and certainly want to limit further exposure when possible. Not understanding why the MR angiogram was not suffiecient (he says report is inconclusive (?). I just feel at this point, what are they looking for, didn’t you repair the damage? And I feel sog good. He just keeps saying, you did not have a “normal” stroke, we need to find out why. so now, instead of feeling great, I feel like a ticking time bomb!
would be interested to know, anyone who suffered a stroke from an AVM rupture and had brain surgery to repair it: what has been your follow up afterwards?
So glad to find this site!