Hello everybody! :)
I'm 15-years-old and I have an AVM located on my leg - it goes from my buttock down to my knee. It is often a source of an intense pain which causes me to limp. My blood is also thicker - when I had a blood test a few years ago, I had d-dimer around 19 000 or so - while the healthy person's d-dimer should be about 500. The doctors called my mother from the hospital, terrified.
My last blood test was better, around 8 000.
I don't know much. There's a connection between AVM - blood clots - pain, but I don't really understand the process. Like, how come does AVM "produce" the blood clots? And how blood clotting cause pain - do the blood clots get stuck in the vessels, or something...?
If any of you has a more knowledge about it - please tell. That would help a lot.
However, one thing I know is the connection between the bloodstream and the pain - when I, for example, run too much, my leg hurts. When I sit too much, my leg also hurts.
A rule of "everything in moderation" fits just perfect here, but there is one more thing:
As we all know, during sleep, we don't move much. Thus, when I wake up in the morning, I often feel pain. When lying or sitting it is even bearable, but standing is the worst >_< The pain weakens after some time - usually about 5-6, sometimes longer, sometimes shorter.
Because of it, I often have to skip school - sitting still in the classroom is too painful, walking not being any better.
This is one of my biggest worries - my grades are dropping because of absences, and teachers (who know that my health is not alright, but they don't really know what is going on) are often all like "why aren't you coming to school? if you were in the school more often, your grades would be a lot better" - all pressing me to come to school, while I simply CAN'T.
Can you guys give me some advice? Anything is fine, really. I'm just so frustrated about my current situation I just can't stand it anymore...
Well, that's it. Thank you for reading it :)