Hi, First off, thank you to all of you for your encouragement. It helps…
Secondly, an update on the meds. After looking at a ton of research and talking to a bunch of people, we decided that propranolol was what we wanted to try next. I don’t like to admit I’m scared, but after what I went through, I really really don’t want to have anything even remotely surgical done. In our research, my daughter found that it said there was some instances of breathing issues if you have asthma. (I do). So I e-mailed my pulmonologist and told him the whole story and asked him what he knew about the link between the two. He said he didn’t think it would be a problem, he’s had other patients on it before and it hasn’t caused problems and even if it did, there are a number of other inhalers we could use - so at worst, we’d keep an eye on it and maybe switch inhalers.
So, last night, I e-mailed my neurologist and explained my concerns about Botox (again) and the other injections and asked him to put me on propranolol. I also told him that we have done our homework and sent him what my pulmonologist said.
Cross your fingers and say a prayer that he’ll agree.