Okay, guys (and gals), I try to find the silver lining behind the thunderstorm but today it’s hard. A couple of things are hitting me right now…
- I think I told you before, but my neurologist thinks the only possible “relief” for my headaches is botox which “might” put me on a feeding tube and on a ventilator for a few months or more. Yuck.
- Yesterday, I met with the neurologists’ Nurse practitioner to come up with a Plan C (we’ve already tried two meds that haven’t worked). She right away wanted to jump to a new (FDA approved injection - about 15 months ago) that is supposed to prevent migraines. I went in to the meeting prepared to ask about beta blockers, other tryptiline meds, propranolol and some others. There are reasons (asthma, high blood pressure, history of no results with amitryptiline) that they don’t think those would be good to try. These injections are, according to my own researcher (TJ’s daughter the Dr.), what is considered second line meds. That means they are less likely to work. So, 1 + 1 usually equals 2, so they probably won’t make a difference. If we can even get insurance to cover them.
And then this morning - I met with the OT lady - I’m making progress with my eyes - not seeing double nearly as much as I was - but it’s still an issue.
And to top it all off, 22 days from today is the day that I really don’t want to remember. That’s the day that this all started.
What do you do on that sort of a day?
We’re a year down the road and we basically are no further than we were in maybe May or June? Except for the balance - that is better - probably 80% improved.
On a dreary, cloudy, windy cold, rainy, soon to turn to snowy day, help a guy out. Besides for material to fight social security with, what have these last 6 months been good for?
P.S. If you’re beginning to think, do we need to worry about TJ and whether he’s going to do “something” irreversible, don’t worry. I have slept on the floor outside my son’s room on suicide watch before. I have a wife, a therapist, a pastor, friends, brothers who I would scream long and hard to before I’d get close to that. This is a “gee, I’m sick of wading through this shit (moderators, if I can’t say that word, please change it)” type of post.