Holiday Insurance

I am having real problems trying to get reasonably priced holiday insurance due to my facial AVM (cheek). All of the Insurance companies that I have spoken to class a facial AVM as being cranial which carries a much heavier supplement than limb AVM's. I've tried explaining the difference but obviously no-one understands. Can anyone recommend an Insurance Company that they use? Also, sorry to everyone for the private message sent earlier - I though I was posting on the Discussion Board. I'm struggling to find my way around the site.