Well, it’s been quite a journey getting to the point of learning that an AVM is the culprit behind the symptoms I’ve been experiencing for a number of years. I learned this on 4/18/2019.
I’ve not experienced all the symptoms on the AVM list, but everything that’s been happening to me is on that list. I think why it took so long to discover is due to none of the symptoms occurring in tandem. The most prevalent one is loss of consciousness which has happened about every 20-26 months for the last 10 years. I never went to a doctor for any of the symptoms; it just didn’t register that something was wrong.
A CTA is scheduled for May 6th, which from what I understand is to determine the extent of the AVM, so I’ve yet to know how severe it might be. I do hope that at 61 years of age it can be treated - I wouldn’t want to be told “go home, there’s nothing we can do”.
I’ve read through a number of posts in the forums and, honestly, some of the stuff I read about is scary. At moments I think maybe just let me be and I will pass when it’s time. But my wife wouldn’t want it to be that way, nor would the rest of my family.
I am giving more serious thought to retiring at 62, which is only four months away. But then I wouldn’t have the insurance provided by my job and we’d have to get the government kind which to me is crap (in the U.S.). In a way I’d like my primary doctor to give me a disabled status so I could justify retiring plus get a higher dollar amount from SS.
That’s my (short) story so far.