Here’s my story. I was diagnosed in 2000 after I passed out in the bathroom while out to dinner. I was given 3 options due to it’s size and position in my brain. Gluing, cyberknife radiation, surgery (not really recommended for me) or do nothing. Since I had not had any other issues and I was told I might have had it from birth, my choice was to wait and see. Five years later, I was at the same neurosurgeon’s office and she asked me how my AVM treatment went. I told her I had opted to do nothing. At the time I was living in Fayetteville, NC. I had actually gone to see her because there was a qustion about having to have my hip replaced. I had recently gotten married and never mentioned to my husband the AVM, because I had not had any more problems. The doctor told him I needed to go to UNC Medical Center immediately and be treated. Well I opted to have my hip replaced first, because it was causing me pain. About 6 months post surgery we made my appointment at UNC and was scheduled for an angiogram (which did not go well). After consulting with the doctor and given my options of gluing, cyberknife or nothing. Surgery was not an option due to it’s size and postion in my brain. I had cyberknife radiation to try and shrink it so they could then operate. They said it would take about 5 years for it to shrink and then I should have another MRI. By this time we had moved to Wisconsin, so I made my 5 year appointment at UW Medical Center. I had started to develop the left side of my face and arm going numb for short periods of time. The new MRI showed NO shrinkage, so I was still in the same state. The doctors ran an EEG and said they thought my “episodes” were mini strokes. They told me to come back in 5 years for another check up. Back again at UW 5 years later, another MRI, episodes occuring more often and this time they said I was having mini seizures. No more space
Something else: I am retired and my husband and I enjoy camping with our 40 foot camper. We have grandchildren we absolutely adore. We enjoy going to baseball games, NASCAR races, football games and horse shows. We enjoy the retired life.