HOW CAN I TALK TO MY CHILD ABOUT AVM?? MY DAUGHTER IS 9 AND THE DR. JUST FOUND AV MALFORMATION/ VASCULAR LESION ON LEFT TEMPORAL IN A CT SCAN. I DON'T WANT TO SCARE HER BUT I DON'T WANT TO LIE.
Hi ChildAVM. There is a member here who might have some ideas…
Her daughter was only 10 when she was diagnosed.
Her daughter has had multiple surgeries!
My daughter’s AVM ruptured when she was 6. She’s had three craniotomies – and currently having more trouble. My daughter has determination, stubbornness and tenacity. I always say those are the things that got her through. No AVM result is the same as another. There’s no knowing how this wiill affect your daughter. An AVM with no bleed is much easier to treat than one that has ruptured.
I asked my daughter the other day what she thought if she had to have another brain surgery. She honestly said she didn’t care.
The truth is nobody knows how his will affect your daughter. Might be some good days and some not-so-good days – for all of you. I would just explain that there are some vessels in her head that are tangled, so we need some specialists to get rid of them. Certainly I sure would think her prognosis would be good.
Best wishes. Luck to you all !!!
THANK YOU SOOO MUCH, THIS IS NEW INFORMATION TO US AND I HAD NEVER HEARD OF THIS "AVM" BEFORE THE DR. TOLD US THE RESULTS BUT THANKS AGAIN AND I HOPE YOUR EVERYTHING WORKS OUT FOR YOUR DAUGHTER TOO.