Hi am Lee from Barbados West Indies. I am an AVM survivor since July 1997. I had my AVM surgically removed after an incomplete embolization. I was supposed to have a follow up angiogram but never bothered but i have made to 50 this year.
So i am thankful to God and brilliant surgeons in Venezuela.
I am thankful for the forum to share my experiences, hopefully i can encourage some as i know the experience that other are going through.
I still have my anxious moments when i have twitching in finger and headaches in right frontal lobe but these are rare and unexpected events but these events do carry me back to those days of seizure, misdiagnosis and medications.
For those still under the doctor’s care be strong and positive. Try hard not to be anxious and fearful.
Bye for now.