Has anyone else experianced this?
At 3am in the morning following my GKS on 23rd Feb I had 3 grand mal seizures, and possibly a forth on the afternoon of 25th... but I was left alone at home for 5 hours so no one knows - all I know is, my mum said she spoke to me on the phone at 2pm and I told her I felt ill and was going to bed, hubby came in at 6pm and I was fast asleep and i did not wake until mid morning on the saturday. I have no memory of waking friday morning, any phone conversations... nothing, friday has completely been erased from my mind!
I am on Phenytoin 300mg for the seizures and I had a ct scan before they sent me home which showed there was no bleeding and I'm waiting for a follow up appointment locally - which hasn't come through yet.
Ever since the op I have had really nasty headaches, my vision goes blurry, the whooshing and "white noise" in my head is driving me insane but worst of all is the weakness and fatigue. I am having support from social services every morning to get my daughter (who is disabled) up, washed dressed, fed and to nursery, which dispite only being a 100 yard walk from my house, I cannot walk to pushing her buggy! A member of staff is bring her home for me.
I feel really bad this afternoon, so I thought I would check my bp... at 3.20pm it was 132/93... an hour later at 4.40pm its increased slightly to 134/96. I have been resting all day.
Do you think any of this is related to the GKS, as it seems to be dragging on a bit, it's been 2 weeks, I expected to be feeling better than this by now.
Do you think it's worth going to A&E for another brain scan to be on the safe side?