I must agree with all of the posts already made here as each has some very valid points. I have had the ‘joy’ of dealing with multiple (6) neurosurgeries and no 2 have had the same recoveries. Some neuros make out that it’s the same for everybody… …It ain’t. No two brains are wired exactly the same, no two surgeries are exactly the same. So it’s logical that no two recoveries are going to be exactly the same.
Some medicos have the idea that if they minimise the impact, that this will minimise the stress and therefore minimise the symptoms. This is false. The stress impact is real but it is not the only contributing factor.
Initially I was told my symptoms were psychological in nature ie I was thinking about it all too much. So I ignored symptoms and just pushed on through. This was a bad idea. My symptoms increased and by the end of the day I was in agony. I was then told I needed to learn to pace myself. So I kept a diary of activity/diet/pain/medications etc. But there didn’t seem to be any pattern, if there was a pattern I could have managed around it all better. Some days I could push myself and be OK, other days I could rest up and be in agony with a pounding head, visual distortions and all the other ‘odd’ symptoms. Some dr’s were of the belief it was medication related or ‘medication rebound headaches’. I was trialled on all sorts of meds but none of them seemed to work long term. My symptoms fluctuate massively, so trying to find that ‘Happy medium’ has been near on impossible.
Some neuros are of the opinion ‘We operated, we fixed’ and although they may have dealt with the initial cause/concern, the whole processes has unleashed another whole range of symptoms and the flow on effects of which have been life changing. It was been 6 yrs since my last major neurosurgery and for me there hasn’t been a day where I have been symptom free.
I MUST agree with others here who have said you are still early on in your recovery. 6 months is like the blink of an eye when it comes to neurosurgical recovery. I often explain it a bit like this “Our brains are our body’s computer system. If you opened up your computer and threw in a handful of aluminium foil flakes, what would happen? You’d have short circuits all over and that’s if the system ever worked properly again”, and that is basically what the neuros have done. They’ve opened your skull and disturbed the fine circuitry within, they have altered the blood flow and the electrical connections within. This can take time for the body to adjust to.
Over time I have learnt how best to manage for me, there will be lot of people with a lot of opinions on how best to manage with every thing from “Just take a Tylenol…” to “Have you seen a doctor…” and although many of them come with the best of intentions, the reality is that you have to manage all of this the best for YOU, not them. We all wish/pray/beg that the medicos had the answers, I’m sorry to say this but, often they don’t. That idea of ‘We operated we fixed’ or 'Well, after 6months the body has fully healed, so everything should be fine…" often this is not the case and we have to manage the best way we can for ourselves.
We know this because we live it too.
Merl from the Moderator Support Team