Hello all I’m new here and i really liked this forum and I’ve read many posts here the past few months and I’ve decided that i wanted to share my story and know your opinions about it.
Actually I dont know where do i start from my son Ali did had his small avm raptured on the first week of June 2019 long story short the craniotomy was done on the 24 of June and a follow up CT angio was done 3 days after the surgery and everything was normal thank god and we were released after 5 days from the surgery and he was perfect … After that on November we did an MRI/MRA angio as a follow-up and everything was normal and then i did look up the internet and discover that the recurrence thing is may possible ( god forbid ) and that it has a higher chance in childrens than adults and exactly in that moment i went crazy and talked to the doctor like a million times and he keeps telling me that its nothing and since he works on this field the past 20 years doing surgeries at least 3 patients a year he has never faced one and the chances are extremely low because my son’s avm is a localized one and he removed it all …
Anyway my doubts started when my boy started having headaches since the starting of this year ( he had them 5 times the past 40 days … Every week or two once ) i know its not that often but it got me worried since he didn’t had any headaches before and the good thing that it wont last longer than 2 to 3 hours and we dont use any medicine because he acts ok and moves and eat normal just saying that his head hurts ( mostly at the top of the head but sometimes on the place of the surgery ) even tho the surgery was at the back of the head ) and when i talked to his doctor he told me that its normal and its not related to the surgery … But im still worried because he never had headaches the first 6 months after surgery so is it really normal ? And have anyone had a similar situation ?
Btw the doctor did asked for an angiogram (DSA) on the next june ( after 1 year of the surgery ) but he claims that its because of me worrying … But he is 100% sure that its no need.
P.S : sorry for my horrible English cuz im not a native speaker.