ok semmes like a famous enough person :D we could ask him to make an appearance on this website.
I know a few of us here had tried to reach out to him and get him to join but so far I haven't seen anything. Unfortunately there wasn't a lot of media coverage about it all. At least not where I am.
Maybe he tries to not cope with the disease too much for now...
Same here!! I use that word alot!
I’ve been dealing with explaining my AVM since I was 13. And it is so frustrating when people say “oh you had an anuerysm!” and I’m like no, I ha an AVM and people can’t seem to understand that there is a difference. What bothered me the most was the fact that even my family would say “accident, injury, and brain thing.” when the football player had the anuerysm I was also pissed bc people were calling and Facebook messaging me to tell me that they learned about what I had. My suggestion is this: blog about it blog about it. I want to write a book about my AVM maje people aware of their ignorance. I mean the first time I tell you what it’s called should be the last time b