I have never been a frequent poster on this forum, but I really wanted to share this:
Two weeks ago I had my first MRI since my GK treatement. My doctor called the same day to tell me that I’m safe. The AVM is gone!
I had (!!!) a small AVM in my left temporal lobe which caused epilepsy (affected my speech). Now that the AVM has disappeared, there’s a 50/50 chance my epilepsy is gone as well, so I’ll probably start experimenting with my medication over the next couple of months (after talking to my neurologist of course).
The GK did cause some hair loss and it affected my energy levels for a couple of months, but now, my hair is back and I have more energy than I’ve ever had before.
Just wanted to share this to give hope to those of you that are still waiting or have a decision to make!