Congratulations on no more AVM! Hopefully her depression will go away soon! Maybe its part of getting rid of the antiseizure meds she was on. God Bless!
Sandie Alger(Kasey’s mom) said:
It sounds like your son had a focal seizure. Very interesting to me, as my daughter had focal seizures and migraines before we discovered her avm(no bleed). then eventually a grand mal caused the testing that showed the avm. The question you’re asking about gamma v. surgery is the million $$ question. Whichever way you decide to go just try to find the best person for that particular procedure. It seems cerebrovascular surgeons will recommend surgery and gamma knife surgeon will recommend g.k. If it’s close to the surface and not too big I would probably go for surgery. My child had gamma(hers was 2.5 x 3.5cm when found)and it shrunk, but not obliterated. Then 3 yrs later we went ahead with surgery and it’s now all gone. I don’t regret doing the gamma knife because it did shrink it, but it was frustrating to have to still deal with it after 3 yrs. She has no deficits, but is struggling with depression that has been going on for about 9 mos. She had surgery 3 mos. ago so…we don’t know the cause of depression. We weaned her off Lamictal(anti-seizure med)about 3 weeks ago. It’s a mystery at htis point. But no more AVM!! so that’s the main thing! Good Luck. It’s a difficult decision.