About 2 years ago I started having bad headaches and migraines. I would have a migraine every day for a week at a time. My doctor didn’t think anything was wrong but I wanted a ct scan. I could feel that something was wrong. This year I started getting headaches every day. I didn’t even know what it felt like to not have a headache anymore.
My new doctor sent me for a ct scan where they found my avm. I then had an mri and angiogram.
My avm is 5-6cm and in the left parieto-occipital region. I don’t know all the medical terms but basically it’s in the parts of my brain 1) the vision part and 2) the motor sensory part.
So a few months ago I was at work and the whole right side of my body felt kinda weak and numb and tingly and I was just super out of it. I had no idea what was going on. And I remember I was sweating a lot. I had a few more of these episodes and my neurologist put me on an anti-seizure medication which has been a god send for me. I barely get headaches and migraines anymore and the sensory seizures have stopped.
Anyway, I was told that my avm is inoperable. My only option is gamma knife. The surgeon told me that if I don’t do the gamma knife then there’s an 80% chance that my avm will rupture at some point.
When I had the angiogram I read about it on here and I was told it was pretty easy. I had a TERRIBLE time. I rebled twice, I was in the hospital for 12 hours, the recovery process was a week, I had a migraine for 36 straight hours and I literally thought I was going to die.
So now I have to choose to either not treat my avm and risk rupture, or gamma knife.
I’m so scared of the side effects of gamma knife. I had kidney stones a few years ago and I had to get them surgically removed and there was complications both times. My sister joked that it’s typical of me. But it’s true. I’ve read a lot about gamma knife and it really is my only option, but I’m terrified that I’ll get the brain swelling or necrosis or worse headaches or seizures after. They said I might need to do the GK 2 or 3 times.
What are your thoughts? Have you done GK and had a good or bad experience? I haven’t given the clinic my final answer yet cause I just need to take some time, but I definitely feel forced in to it.
Sorry, this ended up being really long.
Thank you in advance for reading my post and any thoughts or opinions you can share with me <3