I am so worried. My daughter has suffered with headaches for the last several years. Even though my AVM is not supposed to be hereditary (congenital, not HHT), I told her to see a neurologist about the headaches and to ask for an MRI. Four years ago she went to see a neurologist and he told her that her MRI was normal and that she was probably developing migraines.
Her headaches have become worse and more frequent, so I told Christina to talk to my neurologist, which she did last month. Dr. Sahni asked her to get a copy of her old MRI and her records from her previous neuro.
Within a day or two of making the request from his office,that neuro called Christina to say, "Oh, by the way, there were a few white spots on your MRI". He said that he had spoken to two radiologists about it then. One said they were consistent with migraines and the other one said it wasn't normal. That neuro decided to go with that first opinion, but never said anything about it to my daughter. Now, four years later, I believe he is trying to cover his ass because her new neuro was going to see this on her records!
Christina went to see Dr. Sahni today. She says that two of the lesions are very suspicious and is requesting a new MRI. I am so scared for my daughter. Please pray for her.