Finding a radiation facility

I’ve been researching the different types of radiation GK, CK, proton beam, etc. I know when I was looking for a surgeon I investigated drs. who specialized in vascular and avm’s. What I’m wondering is if there is much difference from place to place with radiation. If one facility has GK (for example) is it going to be just the same as another place with GK. Is one facility known for better outcomes than another one. Once a facility has the equipment and is doing the procedure does it matter if they have been doing it for 2 years or 10 years.

I just read your profile and see that Dr. Spetzler did your sons surgery. You can’t get any finer than Dr. Spetzler and no matter what treatment you are looking into, it is the Doctor, not the facility that makes the difference. You mentioned the Spetzler-Martin scale - those two are considered to have ‘written the book’ on AVM’s and their treatment. I had a consultation with Dr. Martin and he recommended that I have GK. He works out of UCLA, an hour away from where I’m living, and he said there was no reason why I should drive to LA for the procedure when two of the top neurosurgeons - Dr. Duma and Dr. Kim - were in my own backyard. I was already a patient of Dr. Kim’s but wanted to consult with Dr. Martin before making my final decision regarding treatment and Dr. Martin’s recommendation of Dr. Kim sealed the deal for me.
I don’t know about the other radiation treatments but with GK it isn’t just one person that is in charge of the treatment - there is an entire team of Dr’s and specialists that work together the day of treatment to determine exactly where to focus the radiation. If the facility has only been doing GK for two days it doesn’t really matter - it’s the experience of the team members that makes the difference.
Best of luck to you.
Christine W.
www.cduma.com is Dr. Duma/Dr. Kim’s website and has a lot of valuable information on treatment options, success rates, etc. It might be worth taking a look at.

Thanks for your info. Dr. Spetzler did Andrew’s surgery and most doctors wouldn’t have touched it. He came through with no deficits. Unfortunately, it appears there was some of the AVM that was just to deep and on top of an already embolized area so that’s why I’m looking into radiation. I took Andrew 2000 miles for his surgery, because I wanted the top in their field and that is what I’m looking for in a radiation facility. The top in their field at radiation. I’m just so scared of something happening to my sweet boy.

Wow! Traveling 2,000 miles for your sons surgery to ensure that he had the best care is amazing. What an incredible Mother you are! I have faith that Andrew will come through just fine and he is incredibly blessed to have you for a Mother.
I am in California so I looked for the top Neurosurgeons on the West Coast. My brother, an Ortheopaedic Surgeon, is on the East Coast and works with a Neurosurgeon who has a personal interest in AVM’s and knows the ‘creme de la creme’ in AVM research and treatment. My brother is out of town right now but I can e-mail him and ask him to get the names of the top people/facilities on the East Coast (or wherever it is that you are located) if that would be of help to you. Also, I’m sure that there are members here who can give you recommendations, share their personal experiences and offer valuable information that you wouldn’t be able to find anywhere else. You and your son will be in my thoughts and prayers and I hope that through this board and the amazing members you are able to get the information that you need ASAP so that your son can get the best treatment and be on his way to being AVM free.
Christine W.