Finally, there is a plan. After 3 cities and countless doctors we have come to the conclusion to work with doctors out of Arkansas Childrens. We will making our first trip there in November with a round of surgeries and lasers. There seems to a plan and protocol that seems to fit the requirements for Sofia. This has put us at ease so far. The waiting period just is longer than anticipated.

Best wishes to Sofia! I hope the treatments have the best possible outcome.

So glad to hear you have a plan that works for you and Sofia! Thanks for updating us. We are scheduled to go to Arkansas at the end of October for embolizations and laser. Wishing Sophia the best outcome!