As my husband gets treated and we look hopefully for a future where his growth is in remission, we've wondered about aging and facial AVM's.
It occurred to us we don't remember talking with anyone who could answer these questions. I don't want to think too hard about why that might be (I prefer to hope it's just because they haven't been online or haven't found us yet).
If anyone knows of anyone or if they are lurking on here we're curious about what part aging plays on facial AVM (or even other extremity avm). My husband is going to be 44 next month so he's not at that point in life yet but it's something we are curious about. If you know anything about this topic please don't be afraid to be frank. We want to know.