Not sure about anyone else in the UK but I’ve never seen an AVM specialist and I’ve been waiting a long while to see ANYBODY related to vascular surgery.
Whilst I’ve always had my condition in my left hand and always had to be careful with it, it’s never really intruded in my life.
However it’s been getting progressively worse over the last 2 years. I can no longer lift weighty things, put weight on my wrist or basically make any quick movements without being in pain.
I wasn’t sure it was linked to my AVM at first but following an ultrasound it transpires I’ve got a large vein/artery running through my wrist joint.
Now I’m done waiting to see someone who I’m not even convinced can give me the advice I’m looking for. I want to speak to someone who’s seen a similar condition to mine so I can make the most informed decision.
Any recommendations please?