Had an AVM perhaps 5-6 years ago at age 21. Since then have had "out of body experiences" which I am aware that they will be coming on as I "hear notes and this music of pending doom" I then feel out of body. Someone watching me will notice that I look into space for about 1 minute.
I recently had two more within 7 months the most recent this weekend. There was an added symptom which is "passing out". I was admitted to the hospital this time as I was in horrible pain in the back which the neurologist stated was from the "shaking" from the seizure. I was put on Kepra while in the hospital and will be on it until I seem more stabilized then they will switch me to something else. I remember when I had dilantim which really made me tired, crazy etc. What are your experiences with Kepra or lomityal (forgive my spelling). I have a job that requires being alert on the phone, and doing work on a computer needing concentration. Has anyone had any cognitive problems being on these meds?
Also has anyone "heard music" before the onset of a seizure?
