I have searched through this forum but there is one thing I havent found - someone who like me, has lost part of their visual field (for me the lower right quarter) without any bleeds. I have been told by two consultants now that the safest way to treat my large AVM in my left occipital lobe is: embolisms to shrink followed by GK. Both said craniotomy will undoubtedly result in complete loss of right visual field.
I know the are risks associated with both embolisation and GK. Most people I have read about with occipital AVMs that have had negative outcomes from embolisation have lost part of their visual field peripherals. What scares me is that I dont have much peripheral vision left in my right visual field to lose…
I am worried that because I have had brain damage without intervention or bleed, that I could be more suseptable to further sight loss with intervention? But then again the consultants both said there is risk of further damage (field of view loss) if I dont seek treatment and since I’m 23 there is considerable risk of a bleed at some point in the future.
Is there anyone here that was like me: already lost part of their visual field due to AVM without stroke/bleed and how did treatment go for you? Could do with some other peoples storys to help me mentally prepare myself!