Check this out: Eli Lilly, one of the largest pharmaceutical companies in the world, featured Ben's Friends in their Clinical Open Innovations Portal. The Indiana-based company highlighted BF's work in providing support to rare disease patients around the world, which helps spur research, innovations and awareness.
After discussing how BF's social network approach helps rare disease patients in general, the article finishes strong with the following encouraging words:
"We’re privileged to be exploring with Bensfriends.org to better understand their clinical research information needs, and ways to meet them. We look forward to continued collaboration, and to real demonstrations of ways to bring clinical research information to people and communities that need it."
Click on this link to read the article! While you're at it, you may want to leave a positive comment on how Ben's Friends helped you cope with your condition.