Edema?

Well it seems I am still quite the enigma...my MRA showed one thing and my Ultrasound showed another, not completely different results, but enough for the Drs to say they are confused about my case...typical "Tasha Law"...I am newly diagnosed, so please pardon my ignorance and let me ask...do AVM's cause edema...I was under the understanding that they did, but my Drs seemed surprised at the amount of edema that showed up in my MRA...

I don't know what the doctors saw exactly, Tash. There is such a thing as a mixed lymphatic/arteriovenous malformation, which would have a lot of lymph fluid. There is also hypertrophy (overgrowth), which is typical for non-brain avms. When the doc's reaction is "surprise," it is good to get another opinion before treating. When you find someone who is not surprised but has seen cases just like your before, that is probably the doctor to go with. Have you tried Robert Rosen in NY? You can reach him through birthmark.org

Thank you…so good to hear the ideas and info from others affected by AVMs…