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AVM Survivors Network

Dural Arteriovenous Fistula, Cerebral Venous Sinus Thrombosis, Dural Venous Stent, Pulmonary Embolism. I'm here for questions

If I can, I would like to help others with my experiences. If anyone has any questions, I will try my best to answer.

I have had 3 embolizations for 2 different DAVF. Coils, and onyx were used.

I have a stent placed in my right dural transverse/sigmoid sinus veins.

I developed cerebral venous sinus thrombosis after one failed procedure.

I developed a pulmonary embolism after my most recent embolization.

I’ve survived all of these things without any brain, or lasting damage. I will say, choice of doctor makes a significant difference in your outcome and success.

I have experience with warfarin, plavix, eliquis, lovenox, and aspirin.

Let me know if anyone wants to know more about any of these things.

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