Don't come back for one year?

Sorry I haven’t given an update on Nico. We have been kinda of busy around here. Nico’s twin brother had his bone graph surgery. So we have been in recovery. Nico is doing fine, now that the doctors appts have ceased. We were sent to LA to see a vascular surgeon in Anaheim. He made the determination that he wants to wait one year to see if the AVM will reduce further. (Nico still has 5% left.) There hopes (including his neurosurgeon) are it will reduce and hopefully be completely gone. He will still have to have vascular surgery in the future just not right now. So they said besides a 6 month check up no MRI"s or CT scans for one year. I think this is good thing for him. He needs a break… every 6 months are lives are in a upheavel because of an MRI. It really stresses him out… he starts not doing well in school. His speech and comprehension is off. Otherwise he normally is just a happy go lucky kid!!
We will not be able to make the walk- Nico has missed so much school this year that we need to stay put. Plus we are still trying to recover mentally from all the Dr. appts we have had in the last few months. It has been non-stop since November. So what are plans for this next year? I think we are just going to relax… this sure does sound good! It’s the first time I won’t mind being in the waiting place. (wink, wink Dr. Seuss reference-Oh the places you’ll go) Our hearts & Prayers will be with all of you SF…

Take care

PS- I can’t believe I found it… on the internet… I think I have referenced this poem a lot so if you have never read it… here it is… Enjoy!

Oh, the Places You’ll Go!

Congratulations!
Today is your day.
You’re off to Great Places!
You’re off and away!
You have brains in your head.
You have feet in your shoes
You can steer yourself
any direction you choose.
You’re on your own. And you know what you know.
And YOU are the guy who’ll decide where to go.
You’ll look up and down streets. Look ‘em over with care.
About some you will say, “I don’t choose to go there.”
With your head full of brains and your shoes full of feet,
you’re too smart to go down any not-so-good street.
And you may not find any
you’ll want to go down.
In that case, of course,
you’ll head straight out of town.
It’s opener there
in the wide open air.
Out there things can happen
and frequently do
to people as brainy
and footsy as you.
And when things start to happen,
don’t worry. Don’t stew.
Just go right along.
You’ll start happening too.
OH!
THE PLACES YOU’LL GO!
You’ll be on your way up!
You’ll be seeing great sights!
You’ll join the high fliers
who soar to high heights.
You won’t lag behind, because you’ll have the speed.
You’ll pass the whole gang and you’ll soon take the lead.
Wherever you fly, you’ll be the best of the best.
Wherever you go, you will top all the rest.
Except when you don’t
Because, sometimes, you won’t.
I’m sorry to say so
but, sadly, it’s true
and hang-ups
can happen to you.
You can get all hung up
in a prickle-ly perch.
And your gang will fly on.
You’ll be left in a Lurch.
You’ll come down from the Lurch
with an unpleasant bump.
And the chances are, then,
that you’ll be in a Slump.
And when you’re in a Slump,
you’re not in for much fun.
Un-slumping yourself
is not easily done.
You will come to a place where the streets are not marked.
Some windows are lighted. But mostly they’re darked.
A place you could sprain both you elbow and chin!
Do you dare to stay out? Do you dare to go in?
How much can you lose? How much can you win?
And IF you go in, should you turn left or right…
or right-and-three-quarters? Or, maybe, not quite?
Or go around back and sneak in from behind?
Simple it’s not, I’m afraid you will find,
for a mind-maker-upper to make up his mind.
You can get so confused
that you’ll start in to race
down long wiggled roads at a break-necking pace
and grind on for miles across weirdish wild space,
headed, I fear, toward a most useless place.
The Waiting Place…
…for people just waiting.
Waiting for a train to go
or a bus to come, or a plane to go
or the mail to come, or the rain to go
or the phone to ring, or the snow to snow
or waiting around for a Yes or a No
or waiting for their hair to grow.
Everyone is just waiting.
Waiting for the fish to bite
or waiting for wind to fly a kite
or waiting around for Friday night
or waiting, perhaps, for their Uncle Jake
or a pot to boil, or a Better Break
or a sting of pearls, or a pair of pants
or a wig with curls, or Another Chance.
Everyone is just waiting.
NO!
That’s not for you!
Somehow you’ll escape
all that waiting and staying.
You’ll find the bright places
where Boom Bands are playing.
With banner flip-flapping,
once more you’ll ride high!
Ready for anything under the sky.
Ready because you’re that kind of a guy!
Oh, the places you’ll go! There is fun to be done!
There are points to be scored. There are games to be won.
And the magical things you can do with that ball
will make you the winning-est winner of all.
Fame! You’ll be famous as famous can be,
with the whole wide world watching you win on TV.
Except when they don’t.
Because, sometimes, they won’t.
I’m afraid that some times
you’ll play lonely games too.
Games you can’t win
’cause you’ll play against you.
All Alone!
Whether you like it or not,
Alone will be something
you’ll be quite a lot.
And when you’re alone, there’s a very good chance
you’ll meet things that scare you right out of your pants.
There are some, down the road between hither and yon,
that can scare you so much you won’t want to go on.
But on you will go
though the weather be foul
On you will go
though your enemies prowl
On you will go
though the Hakken-Kraks howl
Onward up many
a frightening creek,
though your arms may get sore
and your sneakers may leak.
On and on you will hike
and I know you’ll hike far
and face up to your problems
whatever they are.
You’ll get mixed up, of course,
as you already know.
You’ll get mixed up
with many strange birds as you go.
So be sure when you step.
Step with care and great tact
and remember that Life’s
a Great Balancing Act.
Just never forget to be dexterous and deft.
And never mix up your right foot with your left.
And will you succeed?
Yes! You will, indeed!
(98 and 3/4 percent guaranteed.)
KID, YOU’LL MOVE MOUNTAINS!
So…
be your name Buxbaum or Bixby or Bray
or Mordecai Ali Van Allen O’Shea,
you’re off to Great Places!
Today is your day!
Your mountain is waiting.
So…get on your way!

Dr. Seuss

Ah, Mickie…the things we can learn from Dr. Seuss!! I am with you in the waiting regards…sometimes, no news is good news. Let Nico be Nico and hopefully in 1 year they can give you the great news of NO MORE AVM!! Best wishes to you and your family! Take care!
Denise

Hello Mickie,
I hope the day is as good as it can be and better…So much to be done all of the time and perhaps now a respite for all ? I am full of positive thoughts and loving prayers (as are so many others) for those wonderful boys and all the family. You have all been doing all of the very hard work and I must say that is impressive. You are all amazingly strong, brave and resilliant. Fantastic combination-Do you remember how to breath ? Family function-breathing…exhale slowly through your mouth pushing all the old air out from the bottom to the top. Inhale through the nose slowly and easily filling up the lungs from the bottom up with fresh air…
At this point those who are not laughing should be HAPPY DANCING if physically possible and those who can’t dance because they are laughing well…
Be good to you. Take care of you.
May God guide, guard and hold you (all) in the palm of His hand as always…

Hi Mickie
Like the poem.
Yeah you all need a rest after all those appointments, take care everyone and I will keep you in our thoughts and prayers.