Been using this network more than usual lately. Its been nice.
My AVM is a facial AVM and it bleeds pretty regularly through my lower left gums. I get bleeds pretty much every day, mostly little ones though with more significant ones once or twice a week.
Lately its been scaring me though. I know if I called my doctor, he’d probably tell me I was okay with just the little ones. I had embo/bleo done last month in NYC. But… sometimes when I wake up in the middle of a night from a bleed, I just get scared that it’s going to be “the one” that causes me to go downhill (like some have in the past). I’ve never been scared like this before, and I don’t know what to do about it.
I don’t want to call my doctor because 1) I’m tired of operations and 2) he’s one of the top AVM docs and I still feel like my AVM is less significant than other AVMS he treats, or less problematic than it has been for me in the past. I feel silly.