My AVM was diagnosed about 10 years ago. I suffered multiple bleeds last year from a fistula which has now been sorted with surgery. 6 weeks ago the actual AVM bled for the first time. After my fistula bled I felt fine, maybe a little tired but in general my health was ok. After the AVM bleed I have been feeling awful - extreme dizziness, confusion/disoriented at various points throughout the day, can’t think straight, exhaustion etc. is this normal and if so how long is it likely to go on for? I also suffered multiple seizures a week ago - could these be contributing to how unwell I am currently feeling?
I’d be so grateful to hear any similar stories to help me know what to expect and what is considered ‘normal’
Thanks so much,