AVM Survivors Network



I was wondering if anyone has filed for Disability? I am a 51 year old female with an AVM in my left cerebellar that is extensive and can not be removed… It’s size, extent and involvement of adjacent normal brain tissue effect the safe treatment of the AVM. I am trying to live a normal, healthy life, but there is the possibility of a bleed. I wonder about this daily as to when it will happen and what I could be doing. I am an Office Manager and try not to get stressed out and raise my blood pressure. I am afraid to drive, knowing that I could stroke out at any time. Can anyone let me know if they have applied and what was their experience?



There are a bunch of stories under the Financial and Legal section. I’ve moved your post to that space but I hope there are people who can answer you who are current members, too.

Best wishes,