Hi - long time lurker, very rare poster. I’m also rare because my AVM is in my left neck not my brain. First diagnosed in 1978, treated in 1978, 1986 and 2009. In 2009, the treatment damaged the nerve that controls my left diaphragm. The AVM also damaged the hypoglossal nerve for the left side of my tongue.
Consequently, I speak with a lisp/slur and get out of breath significantly easier than most people. I’m also not “allowed” to do any major cardiovascular exercise or work due to the possiblity of it expanding and forcing more problems.
In 2014, I lost my job working in fundraising for the orphanage we adopted our two youngest children from. Since then, I’ve had a couple of temporary and part time jobs but have gotten turned down or passed over for at least 100 positions that I know I could do. Why? I think it’s two reasons - I have a speech impediment due to the nerve damage and consequently it impacts my presentability for positions of communications, relations, fundraising etc. Also, I can’t do many jobs because they require significant cardio exercise. I’m also starting to develop tremors in both hands which I believe are also due to the AVM - thus typing jobs/writing jobs are harder to get and do than they were 5 years ago
So, my question - how do you prove disability in a situation like this? It would really help financially if I was making more than $300 a week in a part time job. Any input, any advice would be greatly appreciated.
What options are out there? What do I need to know? Thanks