I wanted to share with you my recent DAVF diagnosis, treatment on June 26th and recovery.
I have had a sudden onset of right pulsatile tinnitus about 1‐and‐half years ago, which has been progressive worsening in nature. I was evaluated by ENT and eventually underwent MRI, which discovered an the right transverse sinus abnormalities. Subsequently, I underwent cerebral angiogram in May of 2018, which revealed a right transverse sinus dural AV fistula and sought evaluation and further treatment at Johns Hopkins after extensive research of neurovascular centers of excellence nationwide. After visit with Dr. Tamargo and Dr. Gailloud , a review of my history and images, the recommendation was made for endovascular treatment.
We discussed endovascular approaches including transarterial, transvenous with glue and/or coil embolization. They recommended transvenous coil embolization of the right transverse sinus as treatment for the fistula. We discussed the procedure details as well as the risks, benefits, and alternatives and based on their recommendation agreed to proceed with coil embolization.
The embolization was performed on June 26th for about 4.5 hrs followed by 24 hrs in the ICU. The overall experience at John Hopkins was impressive in terms of prep, care, compassion, post-op, and discharge from ICU. I highly recommend John Hopkins Medical for AVI, AVM, DAVF and any other cerebral vascular accidents/treatments.
I am currently recovering from the procedure and hope to be fully cured.
I experience few headaches in 24 hrs, and feel pressure and strange sensation in my head.
Let me know if any of you have questions or comments about my experience to date and what I should expect in terms of recovery and follow up.