Wow, what a comprehensive reply, thank you so much for taking the time… sincerely…
With regards to Graves I am going to call my Endocrinologist and ask, then armed with the info I will call the allergy centre and see what they say… With that, I will attempt to contact my neurologist/radiologist to see his opinion! As I am sure none of them will directly speak to each other here in NHS!!
So, since my DVAF is in the occipital area, I guess its more likely that it IS affecting my sight? My worry is that I have seen deterioration in my left eye (side of fistula) in the last 2 years, as my pulsatile tinnitus has worn off. So this is freaking me out, thinking that its the fistula which has now changed and causing these problems… so I am having a bit of horrible few days, feeling very sorry for myself. This is the eye that has a ‘slight’ astigmatism… so its horrible not knowing whether a slight astigmatism could cause such blurriness. Or whether, really I am deluding myself.
So the consultant said about the 10 percent, as you say is rather a high percentage… In terms of me having a clot I actually tend to over bleed, so I think this malformation maybe due to childbirth?? Thats the only super traumatic physical event I can think of, given that I was drug free for the occasion! Still, I am wondering if the consultant is just humouring me with an MRI, as he told me to continue with my allergy testing and he would see me after my allergy tests! Which indicates to me, that expects me to need the angiogram… Obviously this has been me digesting it all in last couple of days! But I think, he was just being kind!
In terms of cortical reflux, thank you, I will study and reread what you have said, the diagram link is REALLY helpful…
I guess I am desperately hoping that the fistula has buggered off, but realistically I guess its more likely to have changed?
I did read a couple of studies yesterday showing that 2 patients each with 2 DAVF’s had treatment on one, and the 2nd fistula in each patient, spontaneously regressed…
May I ask if you know of anyone here on this forum that has had a spontaneous regression?
I didn’t sleep well last night, this is so stressful… though its amazing that the last 2 years I have managed to forget about it and pretend it was happening to me!
Richard, seriously, I can’t thank you enough… as for amateur comprehension, I really don’t think so… you have informed me more than my own neurologist!! And in a much kinder way.
One last question… How are you now…??