Hi all, just wanted to post a follow up, I haven’t for some time. I have had a total of 4 DAVF over the course of about 4 years or so. In August I had my first diagnostic angiogram that was fully clear and showed full restoration of all normal blood flow and no evidence of thrombus. I won’t go into all the details here, but also had a cerebral venous sinus thrombosis after a procedure, and a stent placed in a the transverse/sigmoid sinus vein on the right side. It’s been a long journey and I could write a small novel on this topic now.
Anyway, They are calling it cleared/cured with no consequences and to go about my life and forget about it.
The only unfortunate outcome is that they used radial artery access for this angiogram instead of the femoral route, because that has been accessed so many times. The radial artery clotted, and that in itself has become a small struggle. We’ve been able to restore blood flow with blood thinners, but any time they are paused for any brief amount of time, or discontinued, the artery clots again. I’m not sure I’m going to recover this artery.