I had an odd thing today - but a good thing. If you don’t recall, I’m a 40 year AVM survivor (53 years old) and been dealing with pulsatile tinnitus since around 2011-12 or so. It’s been a nuisance until the Embolization that was done in January of 2018 that probably quadrupled the sound and has, in addition to a lot of other problems, essentially made me almost completely deaf because I can’t hear over the noise in my ears - right ear is pulsatile and left ear is constant. I’ve told you that I’ve been trying that new app Curable which is supposed to address the brain body nerve connections in ways that are different than normal treat the symptom pain meds. I’ve found two other times where it has made a brief but significant difference in my headaches. One was when I stopped doing yard work and concentrated on deep slow breathing to get my pulse rate back down. The other one was when I purposely stopped thinking about my upcoming appt with my neurologist and instead thought about the chocolate chip cookie I was going to buy as a reward for making it through.
Today I found a third. In some of the reading and videos that Curable has, it says that it appears that there is a connection between the brain, calm music - classical piano things like that - and feeling better. So, today, my wife was at work, my kids were at school, I popped the hearing aids out, put the blue tooth earbuds in on a classical piano station through Amazon music. I had probably three hours where I was able to get stuff done - some office stuff, some cleaning, some actual plumbing repair - and I didn’t have a headache, I didn’t hear my pulse, it’s the first time since January 29, 2018 that I can say I actually felt “normal” for a while.
And then my kids came home from school and the dogs started barking and I’m back to where I was. But it showed me something very important.
Curable just might be on to something here.