Hi Guys, does anybody know of or has anybody been treated in the UK for a high flow craniofacial AVM with alcohol ? as I am looking for alternatives to embolization which simply tames the beast for a few months before it revascularises ?
George
Peachyoldgirl has had treatment from Yakes in London:
http://www.avmsurvivors.org/profile/peachyoldgirl
so she would be a good person to contact. Also, to get the fullest possible responses to your question, I would suggest you use the "send a message to the group" feature in the UK group and the Extremities group.