Corona radiata?

Can anyone advise me if it’s good or bad to have your AVM in the corona radiata? I understand that to be pretty deep within the brain.

I’m not sure what you mean about it being good or bad to have an AVM in a certain area … I think most of us would say that the only ‘good’ AVM is one that is obliterated/removed/gone. :slight_smile:

I’m not familiar with the corona radiata area at all but hopefully someone on the board will be.

I’m assuming that you or someone you know is newly diagosed (yes, I know what they say about assuming LOL). Have you/they met with a neurosurgeon yet?

I hope that you find answers to the questions you seek and look forward to seeing you on the board. :slight_smile:

Christine

I also have an avm in the corona radiata and am thinking of having gamma knife. I am trying to figure out if I should however and did a search and sound you. Have you found any answers as of yet?

I’ve put everything on hold and just gone on with life as usual after seeing my local neurologist and being told it was something I was born with. I realize I was born with it but as I understand it becomes dangerous the older you get. I am currently praying and living in denial of it until I could go see a specialist and have been encouraged by some to do this, but haven’t yet. You’ll have to let me know what you do and perhaps it can guide me in the right direction.

Dawn Smith said:

I also have an avm in the corona radiata and am thinking of having gamma knife. I am trying to figure out if I should however and did a search and sound you. Have you found any answers as of yet?

Do you have balance issues as well and weakness on one side of your body?

Heather said:

I’ve put everything on hold and just gone on with life as usual after seeing my local neurologist and being told it was something I was born with. I realize I was born with it but as I understand it becomes dangerous the older you get. I am currently praying and living in denial of it until I could go see a specialist and have been encouraged by some to do this, but haven’t yet. You’ll have to let me know what you do and perhaps it can guide me in the right direction.

Dawn Smith said:
I also have an avm in the corona radiata and am thinking of having gamma knife. I am trying to figure out if I should however and did a search and sound you. Have you found any answers as of yet?

Much like Christine said, I don’t think there is such a thing as a “good AVM,” so I will assume your question was more along the lines of “Relatively speaking, how bad of a location is the corona radiata to have an AVM?” Pretty much all areas are cause for concern and the possibility of serious damage. The corona radiata IS located pretty deep within the brain. Unless I am mistaken, it is conencted to the cerebral cortex and is composed primarily of nerve fibers that that conduct electrical impuses to and from the brain and the rest of the body. If it were me, I would not ignore it and hope it goes away or that it will not cause major problems, because if an AVM were to rupture and damage the corona radiata, it could cause major problems with sensory, motor skills, etc.

Think of it this way… The corona radiata is a flowing garden hose, the AVM is a firecracker that is taped to the hose. The fuse on the firecracker has been lit, but you have no idea how long the fuse is. The fuse may be long enough that it will never get to the explosive powder before you grow to be 90 years old, or it could blow tomorrow.

That being said, having the AVM located in a difficult location can make treatment very risky, so there may not be a simple answer as to what route to take. Have you met with more than one neurologist?

hi heather,
i assume when you say “god” or “bad” you mean if it is an area for critical function…well i am sorry to say …but the corrona radita does play a critcal role i brain function…it is actually the white matter and consists of nerves that are responsible for pocessing conscious information …all information from the motor cortex is sent here to be processed it is here your brain interprets messages of movement

I have an avm there and the only treatment in that area is gamma knife unless you want to end up paralyzed or maybe worse. I have been told by all doctors I have talked to that this could not be removed surgically in that area without permanent deficit even by the best of surgeons. I sent my CDs and reports by mail to a doctor at Barrows Institute as well as Mayo Clinic, Dr. Pollock, and they sent a letters back said the recommended sterotactic radiosurgery/gamma knife. Dr. Pollock recommended treatment over observation and Barrows doctor just gave me the percentages of risks if Itreat verses if I don’t. I also consulted with UCLA, Dr. DeSalles, he recommended treatment and of late Hoag Hospital Gamma Knife Center, Dr. Chris Duma who also recommended treatment. I had a functional MRI done at Hoag and in there report pinned down where exactly this is, corona radiata. Before I was told near my motor strip and speech area which is still true but now I know exactly. It is within millimeters. Not sure that I feel any better knowing and wonder how radiation will affect that fragile area too. Is it possible to come out of this okay whether I get treatment with gamma knife or not? I wish I knew …if I do nothing, maybe at worse I will have numbing feeling in my hand and be a little weaker on right side but if I get treatment and there is swelling in that area, what will that do? It is a very tough decision. Then again it could bleed either way because with gamma knife it will take time to obliterate, if it works at all. During which time I maybe at greater risk or less risk of a bleed depending on which report you read. All doctors say no greater risk of a bleed but do they really know? I am going to talk to the doctor who diagnosed this tomorrow as I want to let him know what I have learned and just talk with him. He is the only one that mentioned two treatment of gamma and I just want to hear why. Is he proposing (2) low doses instead of (2) regular doses or ? I know he is a great doctor but I believe he is more experience with surgical removal vs. gamma. Dr. Duma says he has dine the most gamma knife procedures west of the Mississippi. UCLA does not have gamma knife, they have Novalis or I would go there. I was told gamma knife is best for this close proximity as far as accuracy which is why I did’nt pursue treatment at UCLA.

Jake M said:

Much like Christine said, I don’t think there is such a thing as a “good AVM,” so I will assume your question was more along the lines of “Relatively speaking, how bad of a location is the corona radiata to have an AVM?” Pretty much all areas are cause for concern and the possibility of serious damage. The corona radiata IS located pretty deep within the brain. Unless I am mistaken, it is conencted to the cerebral cortex and is composed primarily of nerve fibers that that conduct electrical impuses to and from the brain and the rest of the body. If it were me, I would not ignore it and hope it goes away or that it will not cause major problems, because if an AVM were to rupture and damage the corona radiata, it could cause major problems with sensory, motor skills, etc.

Think of it this way… The corona radiata is a flowing garden hose, the AVM is a firecracker that is taped to the hose. The fuse on the firecracker has been lit, but you have no idea how long the fuse is. The fuse may be long enough that it will never get to the explosive powder before you grow to be 90 years old, or it could blow tomorrow.

That being said, having the AVM located in a difficult location can make treatment very risky, so there may not be a simple answer as to what route to take. Have you met with more than one neurologist?

I don’t have balance issues, but have some issues with my sight. My left eye is actually worse with the test where you read the letters from far away, but I have some dimness in my right vision and on exam my optic nerve looks a bit unusual when they did the picture of the inside of the eye. That’s what started my whole process. My sight decreasing took me to the eye doctor and when they found those things they sent me for an MRI. They wondered if I had multiple sclerosis. I was negative for that but they found the AVM.

Heather said:

I’ve put everything on hold and just gone on with life as usual after seeing my local neurologist and being told it was something I was born with. I realize I was born with it but as I understand it becomes dangerous the older you get. I am currently praying and living in denial of it until I could go see a specialist and have been encouraged by some to do this, but haven’t yet. You’ll have to let me know what you do and perhaps it can guide me in the right direction.

Dawn Smith said:
I also have an avm in the corona radiata and am thinking of having gamma knife. I am trying to figure out if I should however and did a search and sound you. Have you found any answers as of yet?

I have not. Life circumstances have not allowed since the time I was diagnosed. I have started a new full time job two weeks ago now and am thinking I may need to investigate this further in the near future. Our area is limited in the field of neurology and I will be looking at traveling to see another neurologist.

Jake M said:

Much like Christine said, I don’t think there is such a thing as a “good AVM,” so I will assume your question was more along the lines of “Relatively speaking, how bad of a location is the corona radiata to have an AVM?” Pretty much all areas are cause for concern and the possibility of serious damage. The corona radiata IS located pretty deep within the brain. Unless I am mistaken, it is conencted to the cerebral cortex and is composed primarily of nerve fibers that that conduct electrical impuses to and from the brain and the rest of the body. If it were me, I would not ignore it and hope it goes away or that it will not cause major problems, because if an AVM were to rupture and damage the corona radiata, it could cause major problems with sensory, motor skills, etc.

Think of it this way… The corona radiata is a flowing garden hose, the AVM is a firecracker that is taped to the hose. The fuse on the firecracker has been lit, but you have no idea how long the fuse is. The fuse may be long enough that it will never get to the explosive powder before you grow to be 90 years old, or it could blow tomorrow.

That being said, having the AVM located in a difficult location can make treatment very risky, so there may not be a simple answer as to what route to take. Have you met with more than one neurologist?

http://www.answers.com/topic/corona-radiata

There is information here. You have to read a bit as the corona radiata is the start of where the fibers that lead to many different other levels of different functions are from what I am understanding. The paragraph below is under the link above which has various links to information of different functions.

In neuroanatomy, the corona radiata is a white matter sheet that continues caudally as the internal capsule and rostrally as the centrum semiovale. This sheet of axons contains both descending and ascending axons that carry nearly all of the neural traffic from and to the cerebral cortex. The corona radiata is associated with the corticospinal tract, the corticopontine tract, and the corticobulbar tract.

Heather said:

I don’t have balance issues, but have some issues with my sight. My left eye is actually worse with the test where you read the letters from far away, but I have some dimness in my right vision and on exam my optic nerve looks a bit unusual when they did the picture of the inside of the eye. That’s what started my whole process. My sight decreasing took me to the eye doctor and when they found those things they sent me for an MRI. They wondered if I had multiple sclerosis. I was negative for that but they found the AVM.

Heather said:
I’ve put everything on hold and just gone on with life as usual after seeing my local neurologist and being told it was something I was born with. I realize I was born with it but as I understand it becomes dangerous the older you get. I am currently praying and living in denial of it until I could go see a specialist and have been encouraged by some to do this, but haven’t yet. You’ll have to let me know what you do and perhaps it can guide me in the right direction.

Dawn Smith said:
I also have an avm in the corona radiata and am thinking of having gamma knife. I am trying to figure out if I should however and did a search and sound you. Have you found any answers as of yet?