I have a large posterior fossa grade V AVM which takes up most of the vermis of my cerebellum. My first haemorrhage was back in February 2009 and the second haemorrhage was more recent update in August 2015. In both instances I was very lucky and did not have any mobility issues.
However, at this time after a second haemorrhage and receiving embolisation treatment and a follow up cerebral angiogram in October I wish to gain opinions of other professionals in the field. Back in 2009 I received information from Sheffield here in the UK that the AVM is untreatable due to its size and location within the brain. I am now awaiting an opinion from Sheffield once again.
I have received an opinion also from a neurologist in the USA to go for radio surgery over a three year period to shrink the malformation to allow for removal.
The location of the AVM is near the brainstem in my case and another haemorrhage may have devasting consequences. At this stage I want to clarify every option.
Does anyone know of contacts in Israel or Germany as I know there are many specialists there?
Thanks and I hope you are all feeling well!