I am the daughter of a CM survivor, my mother - Kathe who is now only 54 years old. I am writing to see if anyone else is dealing with the same issues and if they have received any better information or help unlike my mom.
She had her surgery in 2009, and continues to deal with more challenges everyday. Not only does she require a walker to walk short distances, she is confined to a wheelchair outside of the house. She has what the doctor describes as phantom pain in her legs. The pain started in her feet and now has moved up to her lower back, and she has the same pain in her right arm. Basically was told with physical therapy, this would help but yet only makes her pain worse. She has been on medical marijuana pills for the past year but even that doesn't seem to really help her. Each time we visit her family doctor, she really cannot help. The neurologist, who has been very good to my mother and our family - says she is doing well for what she has been through and says as they have tried different pain medications, there is not much more left to be done.
I may be preaching to the choir here, but it is hard to see your mother in pain and have no concrete solutions. Is anyone else going through this, and have you had any luck in finding a comfortable solution?