I hope you are enjoying the site. We're having a blast running it and seeing all the wonderful connections and support that it creates.
We're all volunteers (no one is paid here, it's a completely volunteer site and we get our $ donated to us: http://www.indiegogo.com/Bens-Friends-Builds-Support-Groups-for-Patients-With-Rare-Diseases - the Moderators are all volunteers and love doing it because they get to help thousands of people. :)
A lot of folks have asked recently if we can have people in the chat 24 hours a day. Since we don't have paid staff, we can't do that. However, the good news is that there are a ton of members globally so no matter when you are on, there are good odds that someone across the world will be on too. :)
I hope you understand our limitations. We're doing the very best we can. If you'd like to know more about us, check out www.BensFriends.org or watch this 60 second Ben's Friends movie.
Wait... you're not Ben...lol. But thank you for posting this. :)
Ben...yes, we do what we can to help people! For the 1,000 time, thank you for starting this Network! It certainly has made a difference in my life!
How do I say this ? From day one of the very few to this day of the growing numbers your best is Blessed .
Much THANKS to you, Ben for starting this awesome community!
Thanks Ben for planting this very positive seed and thanks to the team that keeps it afloat and nurtures it.
Your network is a blessing to all involved. Thank you so much. I just heard from my cousin about an hour ago who had five cardiac bypasses on Good Friday, and she was a recipient of blessings generated by a worldwide prayer chain I requested here on our support board. She told me she literally felt the healing power from them and recovered as a result! The good Lord lives in our support network!
This site is a life line to so many Ben and I thank you and all the volunteers to keep this going - you're an amazing team!!!
Ben is there a way to change color and page decorations??? I thought there was but I can't figure it out?
Thanx for all your doing!