Charities for children with AVM

I was just wondering if anyone knew of any non profit organizations or charities that assist families with children with AVM. We are receiving SSI benefits but we’re lucky if that $400 a month. One income for 4 people isn’t cutting it at this point. We would really love to move out of California but with all of upcoming preparations for my sons Gamma Knife, it’s not really an option. We’re just looking for that little bit of assistance that will help us get back on our feet. Any advice and/or direction would be greatly appreciated. Thank you

You can try The Aneurysm and AVM Foundation at I wish you the best!