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AVM Survivors Network

Cerebral Proliferative Angiopathy


#21

Ladies,

I think this thread is such a unique set of information, I’ve moved it to the AVM 101 category so other people might find it more easily. Too valuable to lose this information for other patients.

Very best wishes all,

Richard


#22

Hi there, my daughter was diagnosed with an AVM on 4th Jan 18. We were referred for angiogram which happened last week and we are due to meet with the consultant on 20th March to go through all the results. However we saw on the angiogram notes that they are suspecting it’s a CPA AVM! We didn’t know what this was but have looked it up and are in complete shock by what we are reading! Our daughter is only 6 years old and we feel completely devastated this is happening! I don’t really know what I’m asking here but I’m just reaching out to see if anyone can shed any light on the horrible diagnosis for me! Thank you!


#23